Wednesday, December 4, 2013

Juvenile Arthritis, affecting 300,000 Kids in the U.S.



Great video!  When the children in this video talk about it hurting to write in school with arthritic hands...this is totally Savannah.  Thanks, Teri, for raising money and awareness for Juvenile Arthritis!

3 comments:

  1. Conversation started today
    Jessica Proud Mummy Wood
    17:46
    Jessica Proud Mummy Wood
    My daughter Imogen was diagnosed with Polyarticular Juvenile Idiopathic Arthritis in Feb this year. She wasn't even three years old.
    I remember feeling so alone after diagnosis. I didn't know anyone else who had a child with this disease and we were literally just given a diagnosis and shoved out of the door by the local hospital.
    One of the first things I did when we were settled at home was Google, to see if there was anything out there for parents with children who have arthritis and other than places who gave lots of information, there wasn't much where I could discuss things with other people going through the same things.
    I have talked to a few arthritis parents since and everyone has said the same. There are no real places to go to talk to others in the same situation.
    So the idea of Our Arthritis Journey was born. I believe there is a real need for somewhere to share our experiences, get advice and support if we need it, and also somewhere for the younger sufferers to have somewhere to chat and talk to others like themselves.
    I have been on many forums throughout my life dealing with many different things. I decided that having a forum would be a good place to start. That way people could join, see that they weren't alone and that there were many other people going through the same thing.
    The forum opened yesterday (16.12.13) and we have 5 members so far. Eventually I would love this to expand and be a great community for people to come and discuss anything, from the weather where they are, to the next step in treatments for their child. Also it doesn't just have to be for parents, it can be for grandparents, aunts, uncles, siblings or anyone else affected by the bombshell that is JIA. Because the one thing we all know is that JIA does not just affect the child, it has a knock on effect for the whole family.
    http://ourarthritisjourney.proboards.com/
    http://imogensarthritisjour.wix.com/ourarthritisjourney
    I was wondering if you could please share these links for us so that other parents in our situation could find us.
    Thanks

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  2. Jessica,

    Thank you for your comment. I think it is awesome you have stated a JIA forum! Another wonderful source of information for moms is on Facebook ... Mothering Juvenile Arthritis. It is a closed group, but you can ask to become a member. It is WONDERFUL!
    Thank you for being willing to share your daughter's story. You have a chance to be a blessing to so many people. It is tough feeling alone on this journey...but, we are in this together!
    Again, thank you for sharing.
    -Jenny (Savannah's mom)

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