This is day one of a new blog so that Savannah's story can be shared with a wider audience.
Savannah is doing pretty good. She still fights joint pain in her fingers, wrists, neck, back, knees, achilles tendons, and feet. Her worst pain is in her fingers and feet. She has a hard time writing in school each day and cannot run for a long period of time without pain. She started Methotrexate injections in September of 2011 (at age 8 years old). She give herself a shot every Friday. She also started Remicade infusions, every 4 weeks, at the same time. Not much result has been seen with the Remicade. Savannah starts Orencia infusions on Monday at Children's Hospital. The above picture is of Savannah as she awaits to get steroid injections into both sides of her jaw. Many people do not know that many children with juvenile arthritis also get arthritis in their jaw, which causes pain when eating...or just about any time. Juvenile arthritis is just plain unacceptable! However, when life gives you lemons, we must make lemonade! That is what this site is all about.
Here are some of my first few journal entries at the beginning of this journey:
Friday, August 12, 2011
"I'm afraid ..What is this pain???"
- Thursday at dinner (unless CVS gets this prescription in sooner) - Savannah starts Diclofenac - 3 x per day with food. This is a heavy duty anti-imflamatory. Starting Friday, Savannah will have to go to the school nurse after lunch each day to take this pill. ( I will get it to the nurse).
- Friday - Savannah will be given an injection of Methotrexate (by me). This will be given once a week, every Friday. This is another potent drug for arthritis (chemo drug in lesser amount). She will remain on this drug for probably the rest of her life.
- Sometime next week, when Children's in Birmingham gets all the paperwork set up and done, Savannah will travel to Children's Hospital in Birmingham to get an infusion of Remicade. This will be done twice in September, and then once a month there after. This infusion will last about three hours each time. This treatment will also aid in Savannah's arthritis, but is mainly being used to treat the Uveitis. The infusions will have to be given monthly for several years...Uveitis is mean.
|Savannah and two of her classmates at their lemonade stand.|
"Help Fight Juvenile Arthritis"
Over $100 made with that lemonade stand, and all of it went to the Arthritis Foundation.