Thursday, August 16, 2012
New school year...same pain...new attitude.
Sorry I have not posted in a while. Savannah started the fourth grade one week ago. Things started out well...great teachers, great school, new beginnings. Though Savannah has made much improvement from one year ago (she was diagnosed one year ago this month), the old arthritis pain in Savannah’s fingers just refuses to go away. A writing assignment, she could not finish in class ,came home today for homework...”Mom, I had to take a lot of breaks while writing today. The pain was bad, but I did the best I could.” She finished the seven sentence assignment at home, taking many breaks to stretch her fingers, fighting through the pain. However, one year ago, Savannah could only manage 17 characters...now, she can manage 17 words. We are thankful for any and all victories. We are thankful for patient and understanding teachers. We are thankful for good medicines. Savannah takes her 55th Methotrexate shot in the morning. She will take her 15th Orencia I.V. Infusion at Birmingham Children’s Hospital in a couple of weeks. The pain is still there in most of her body, but more manageable. Also, we have a new attitude. We only complain if it is really bad. If you can’t say something nice, say nothing at all. We dance in the rain.
More to come...keep praying. Savannah will keep fighting!