Friday, August 15, 2014

Did you know?? Facts about this kid with Juvenile Arthritis.

Small facts about Savannah (and many kids with Juvenile Arthritis)
that you may not know:

1. Savannah uses an electric toothbrush when her hands really hurt because it has a bigger grip and easier to use when she is hurting.

2. She rarely complains, but instead quietly slips away to see the school nurse to take motrin to help alleviate pain so she can write with a pencil.  The simple act of holding small items (hairbrush, pen, toothbrush, fork) is very hard for someone who has arthritis in their fingers....true for both young and old!

3. First thing every morning (going on five years), Savannah is pushed in a rolling desk chair from her bed to the couch to avoid the pain of standing on her feet when she first wakes up.

4.  Savannah uses a rolling backpack at school (even as a middle schooler).  This really helps many children with JA. (We like PBteen Gear Up Rolling Backpack.)

5.  When Savannah's hands hurt too badly to write anymore, she will tell me (mom) what to write and where to even punctuate on homework.  For these moments, I am "her hands".

6.  Savannah's working motto: "Do the best you can at the pace you can."  Savannah has been one of the last people to turn in classwork and test work in school for years.  Her hands can only write so fast.

Savannah's pencil grip.  These make grasping the pencil less painful for her.
Pencil grip seen above: Ableware Foam Tubing


  1. How did gluten free go? Please be specific. How long did you try, are you still trying? How many mistakes ingesting gluten? Were any other foods eliminated. Did any symptoms improve?\

    1. Dear Anonymous, We went gluten and dairy free for three weeks. We were very strict (did not cheat) because three weeks was all I could get my family to agree to. Savannah (JIA) saw no difference with her pain, and My husband and I saw no difference with how we felt in general (I actually felt worse on the diet). However, everyone responds differently, and I have known of others where food was found to trigger their pain/arthritis. Also, maybe if we had done it longer we would have seen a difference. WHat I researched prior was that most people knew if it helped within days of being on this way of eating. I would like to try a diet without any sugar or artificial sweeteners, next, but haven't been brave enough to try it yet. (:

  2. Hi, I'm Caitlin and I'm 16. I was diagnosed with JRA and i was wondering if you had tried ezorb. My mother just ordered it and they're a lot of good reviews on it. I hate to see other people go through all this and I really hope this helps.