Wednesday, May 9, 2012
Savannah is our hero!
Savannah just finished a four week session of gymnastics at our YMCA...one day a week for one hour. She missed one of the four week classes. She was too congested to go...a side effect of her Orencia infusion that particular week. Savannah slept only two hours one night, the congestion was so bad. This, in turn, caused her to miss “Field Day” at school...her favorite day of the school year. Oh, well. At least she did not miss any tests or school work. If one was to look at her, you wouldn’t guess the girl on the balance beam has juvenile arthritis in nearly every joint in her body. You go girl!!! Praise God for such accomplishments! Savannah had a flare up over this past weekend. We are not sure what caused it, but she basically could not walk for 24 hours straight. I carried her on my back when the wheeled desk chair was not available to use. At one point, I carried her on my back to the women’s restroom at church. She had to go to the bathroom and her feet and ankles would not cooperate. What a site! Me carrying Savannah on my church dressed body complete with a big hat! I think my dress was hiked up to where half my slip showed! Oops! We won’t post a picture of that (I don’t have one, anyways...thank goodness!). Savannah has been complaining of her jaw hurting more and more lately. This is not a good sign. An MRI on her jaw is scheduled for next month. A second set of steroid shots to the jaw may be in her future...but, hopefully not. Savannah’s spirits remain high despite everything. One of Savannah’s closest friends wrote her a letter this week, encouraging her to never give up. She also said she would always be by her side through it all. What a blessing friends like that are in so many ways. Our neighbors, a few doors down, sent us a note that she and her two young boys pray for Savannah on a regular basis. It is things like this that keep Savannah motivated to not give up! Thank you, everyone, for all your prayers and encouragement. It makes a big difference.