First off, know the following entry is from a new friend of mine that God brought to me (she gave me permission to share). Her son has juvenile arthritis (like Savannah's, but more severe) and this is how I came to meet this wonderful lady. Beware, the following information is powerful. To view blog where this information originally came from, go to:
From the Voices of Families….
anything they wanted the general public to know about JA what would it be…
This list below is a paraphrased summary of their very heartfelt responses.
Just a window into the lives we live, thoughts we have, and strength our
children possess. From the voices of families…
emotions, and engagement/activities with others
doesn’t mean he/she is not suffering
relationships, their play, their quality of life...
hit them hard
the road. Will they be able to have children?
and quality of life
for others it takes much longer, and yet others continue to have
bumps in the road and struggle.
children would already be cured
emotions, doctors, stress, expenses, meds, remission,
active disease, medicated remission, …and yet life continues
to go on and we try to enjoy life and a happy childhood.
this is autoimmune and my kids may be cute but they hurt BIG time.
for prayers because they look fine, it is hurtful.
too will get this.
than some cancer patients
gets blood work, can’t sleep, goes through physical and occupational
therapy, sleeping with splint on their wrists/ankles, getting
ongoing IV’s, getting MRI’s, CT scans, xrays, joint injections,
scopes, surgeries, shots, throwing up, in pain, with swollen
joints, with fever, with rashes, struggling to walk, and yes…I
too see my child smile and am so thankful that through it all
he/she finds a smile.
and can be mild to severe and chronic and can be different
from day to day
of their health, because of treatment, or because they cannot be
around others with a flu due to a compromised immune system
then you don’t
seriousness of their disease…and the young ones who don’t
understand are also scared
didn’t realize how serious this disease can be.
make this disease better to families who live with it because it is
affecting our beloved children.
It's a full on battle everyday!
more research is needed